When T1D Feels Invisible: What I Wish People Understood
One of the most complicated parts of living with type 1 diabetes is how invisible it often is.
From the outside, I may look completely fine. You might not see the blood sugar checks, the carb calculations, the mental math before every meal. What you will see, though, is me treating it—openly and without apology. I’ve managed a low in the middle of a work event, adjusted my pump during a conversation, and yes, even sipped from a juice box while interviewing a job candidate. Because type 1 diabetes is part of who I am, and I no longer feel the need to hide it.
Type 1 diabetes is constant. It doesn't take breaks. There are no off days or holidays. It requires 24/7 decision-making, even when you're exhausted, overwhelmed, or just want to feel normal. And yet, so much of that effort goes unseen.
That invisibility can be isolating—especially in a world that often only recognizes illness when it looks dramatic or disruptive. Type 1 isn’t always visible, but it’s always there. It’s the silent layer behind the scenes of everything we do. And that’s what I wish more people understood.
I wish they knew that resilience doesn’t mean it’s easy. That just because someone is smiling, showing up, or succeeding, doesn’t mean they aren’t managing a heavy load in the background. People with T1D often become experts at functioning through discomfort—and sometimes, that means others forget what we’re carrying.
I wish they knew that type 1 diabetes isn’t about avoiding sugar. That’s a common misconception—but it’s far from the truth. This disease isn’t caused by eating habits, and managing it is about so much more than food. It’s a complex autoimmune condition that requires constant attention to insulin, activity, stress, hormones, illness, and more. The idea that it’s as simple as “watching what you eat” minimizes the daily effort and precision that real T1D management demands.
I wish they knew that support means more than asking, “Are you okay?” It means learning. It means checking in, asking thoughtful questions, and making space for the mental and emotional toll—not just the medical facts. Sometimes, just being seen and understood is the most powerful support of all.
Over the years, I’ve learned to carry this invisible load with strength. I’ve learned how to advocate for myself, how to ask for what I need, and how to build a community around me that doesn’t need visible signs to show care and compassion.
Through Touched by Type 1, I’ve also seen how powerful it is when people do understand. When teachers learn how to care for a student with T1D. When friends keep snacks on hand “just in case.” When co-workers don’t question a break to treat a low, or roll their eyes at the buzzing of a pump or CGM. Those little moments? They matter.
So if you don’t live with type 1 diabetes but you love someone who does, here’s what I hope you take away: Just because you can’t see it, doesn’t mean it’s not there. Your awareness, your patience, and your effort to understand—it makes a difference. Truly.
And if you do live with T1D, I want you to hear this: I see you. I get it. And you're not alone in feeling like this disease sometimes hides in plain sight. Keep advocating. Keep sharing. And never let invisibility make you feel less valid, less strong, or less worthy of support.
We may not always be seen—but we are never without value.
